So Middles received his first Humalog insulin pen yesterday. I must say I love Novalog but the Huma pen is Awesome looking.
He was beyond excited. Even Sweetstuff said she’d consider MDI again based on the Huma pen.
That is the part that makes me sad and happy at the same time.
It’s sad that my kids can get so excited about new diabetes tools. They shouldn’t have to be excited about them. I am grateful my kids all have such positive attitudes about diabetes management. Life would be so much harder for all of us if they despised it all and only saw what I sometimes see (a life sentence with diabetes, possible complications, added responsibility, the threat of death daily a different normal than others).
He was so excited to try it that he wanted to eat all the things just so he could inject.
His life with the Huma pen will be short-lived since his endo is already beginning the process to get him a pump. Thank goodness because have I said what a pain in the butt diabetes in school is here in CA?
He will be carrying his pen with him at school. He will have it in his backpack with his meter. The rotating nurse that is only at his school one day of week called me twice already (from another school) telling me he had to keep it in the office. I call bullshit.
I’m not having him be late for 1st period to drop it off, then late for the carpool after 8th period to pick it up and likely forget it frequently. He will carry it with him. (there are no lockers at his school, he carries his back pack with him everywhere regardless)
The nurse isn’t happy with me. She tried to insist. I basically said I would keep him home everyday unless she saw things my way. We will have a 504 review meeting early next week so its written in the 504. I have assured the nurse that he will not inject anywhere but the office (although honestly that’s silly since there is no one there to assist him regardless – I just don’t want him doing it in the bathroom and he isn’t comfortable doing it in front of other students).
Moving from a very very early diabetes diagnosis that only required a small dose of Lantus to the more difficult Honeymoon stage is well – total suckage.
His pancreas is still producing a good deal of insulin so dosing for highs and covering carbs can be tricky and treacherous. Last night he was 280 before bed. He was also very hungry. He ate a bowl of cereal and we dosed for the elevated blood sugar and the carbs. I checked his blood sugar two hours later while he slept.
I’ve been spoiled. Sugarboy can down a 15 gram juice box in his sleep in less than a minute when he’s low. He doesn’t wake up. He feels the straw and smells the sweet nectar and simply drinks without ever opening his eyes.
Sweetstuff is a bit harder – I normally have to coax her awake just a bit and put the straw to her lips. She occasionally snaps at me “WHAAAT?” but mostly just sips the juice down, takes about 2 minutes.
Middles – holy difficult! I tried placing the straw on his lips while he was still sleeping, hoping that like Sugarboy he would simply drink it down. No go. He rolled over and rubbed his lips as if a loose pillow feather had landed on them.
I tapped his shoulder and said his name in a whisper. “Middles (I don’t actually call my kids by their blog names – that would be weird), middles honey you’re low, drink some juice”
Of course he moaned and rolled over. I try again, a bit heavier tapping and loader voice. “Middles you’re low drink the juice”
Fuck – now I have Shelby in my head “Drink the juice Shelby”
Still no response – well no helpful response from the boy. I place my hand behind him and pull him into a sitting position. He moans and says “ok”
Then falls back down.
Again I get him sitting. Again I put the straw to his lips. Again he says “ok” but remains sleeping sitting up.
5 more minutes of me trying to wake him enough to drink. When he does seem slightly conscious I tell him to drink the juice. He takes a tiny sip. Lays down and pulls his covers over him.
This is when I realize I’ve been spoiled and I am likely screwed.
Again I get him up. Again I put the straw to his lips. Drink Middles, Drink.
Another 5 minutes of slow painful sips.
He remembers nothing.
This morning he checks his meter and sees the 67. “Mom was I low, I saw a juice box on my night stand.”
Yes Middles you were low. It’s all good, I had your back.
Diabetes is stupid. My kids are awesome. I’m lucky.