Above 200 almost consistently. So this is the end – the real end of the honeymoon stage.
He was diagnosed almost a year ago – Aug 1st of 2013. A day that will live in infamy along with Feb 7, 2007 (Sugarboy’s diagnosis date) and April 19, 2009 (Sweetstuff’s diagnosis date).
His diagnosis date wasn’t as traumatic (at least not for him) as Sugarboys (nearly lost him) or Sweetstuffs (required 1 night in hospital for high ketones and dehydration). Middles was diagnosed after a confirmatory OGTT (oral glucose test). He had failed the same test in June of 2013 and the second test was to confirm that his Tcells had truly begun to walk off the job. He wasn’t hospitalized and didn’t require any IV anything. He didn’t even start insulin for another week or so and even then it was only 1 shot of long-lasting insulin. No meal time insulin for another 2 months.
For the last almost year he has been on smaller doses of insulin than even his younger brother (7+ years in, but half his size). Over the last few weeks I have had to nearly double all his ratios of insulin – correction factors, carb ratios and basal amounts. (Sorry for those not in the know – lots of pump/insulin jargon there – if you want to know what any of that means message me). Seriously DOUBLED it all. Still he is hovering in the low 200s most of the time. Today I will increase his basal more.
I do my very best to keep my remarks to him after hearing a blood sugar result as non-accusatory as possible.
It isn’t his fault. I know that. I try hard to make sure he knows that.
It is true that of all my kids he is the most likely to ‘cheat’. To eat ‘little’ things without dosing (a tiny cookie that is only 7 grams, an 8 oz glass of milk that is 12 grams, a granola bar that is 11 grams). In the past he would just forget he could/should dose. But that isn’t the case the last couple weeks. He is well aware of how many highs he is having and has been diligent about dosing. That doesn’t mean he has stopped all the snacking – now he is just dosing for the ‘little’ things.
Some of the highs may be because he does snack so often – never allowing his body to catch up but that doesn’t account for the morning numbers in the 200s or other fasting numbers in the 200s. His body just seems to be becoming more insulin resistant.
He is a scrawny kid. All skin, bones and muscle and he is always hungry.
I can’t imagine how all this plays with his emotions. I hope he isn’t feeling like he is failing. It isn’t him. It’s diabetes and diabetes is an asshat.
He will put on his Dexcom again today and we will watch the trends. See where he is going and when. We will also try over the next few days to not snack and do our best at carb counting at meals. Please wish us luck.