Hi there.

I’ve been a little laxidasical in my posting. Ces’t La Vie. No one pays me (if someone out there would like to pay me,  Ill be more than happy to tap my creative brain more frequently – honestly you can pay me in Starbucks Sumatra and we can kill two birds with one stone. Attn PITA: no birds will actually be killed)

So today I was procrastinating doing anything early in the day, so I meandered around Facebook/Twitter/Blogs – the usual suspects. On Facebook WEGO shared a blog post, and although I didn’t know the blogger or what Dystonia was, I took a gander. I read the post – it was about Dystonia awareness – wear blue. Read that post here – HERE

Blue?? Blue is for diabetes awareness and autism awareness – of course we don’t have a trademark on blue (not like that other organization who actually did trademark the color pink – No I will not shut up – they did – also they are the reason no other organization can “Walk FOR A cure” – not that I want to bad mouth the organization – they do an awful lot for an awful lot of people and they sure do put on a great walk – BUT they sue any other organization that steps on their trademarked toes – not sure I want my donation money paying for legal fees) HOLY COW did I digress.

Anyway back to Dystonia – I didn’t know what it was so I googled it. Then I felt stupid because if I had just delved a little deeper into this awesome blog I would have read a much better description of dystonia than what Wiki provided.

I wont try to explain it myself because the author of the blog does a superb job of it. I mean of course she does – she lives with it and when we live with something it becomes easier to explain – trust me I can describe the hell out-a diabetes. Click here to learn about dystonia.

So back to “Blue” – blue is a wonderful awareness color. I shared my thoughts about Blue=Hope with the Pamela, author of Chronicles of Dystonia Muse, “Blue is a color often associated with sadness (depression in people with chronic decease is so common) but also the color of HOPE – like the pacific ocean ( I always hear Morgan Freeman’s voice in regards to Hope from the movie the Shawshank redemption – “hope is a good thing. maybe the best of good things. and no good thing ever dies” – he goes on to say that he hopes the pacific is as blue as he imagined. Blue=Hope.”

I like that a number of “groups” use the color blue. We are all fighting a battle and sharing a color units us all just a little bit.

OK – so the real reason for this post was not to discuss colors or poor business practices of huge organizations.

This post is brought to you because of another post that Pamela shared – Showing Up For The Party.

Pamela says it all and says it loudly with these words – “If you plan to change the world – or even one small corner – start by showing up for the party!”

Her post is about Dystonia Advocacy Day which was May 1, 2013 in D.C.

See the point is to show up. Stand up and be counted. Don’t let congress or the nation brush – us – them – anyone – under the rug.

Letters and phone calls to senators and congressmen – Awesome.

In person meetings with those in legislature – as in the promise campaign via JDRF – Fantastic!

Becoming a delegate for Children’s Congress via JDRF – Outstanding

Sharing personal stories in social media to raise awareness – Terrific

It’s all about showing up – in person is best (hard to ignore real bodies standing front and center) but all communication lets those in power know they only have the power because we gave it to them – it can be taken away.

Multiple points in this post –

Colors and walks shouldn’t be trademarked. For Shame.

Blue is a color of Hope for everyone.

Everyone is fighting a battle – and I don’t believe any are less important than others. (well maybe if there is an organization out there demanding research to enlarge male genitalia – that would be like the bottom of the list – but then again some might disagree – although I’m fairly certain a good deal of money is already spent on that area of study)

Its late – I’m rambling and I’m out.